Insights into the challenges of long-term effects of Covid-19 from a patient's perspective.
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Bindu Kalesan shares her experience with long Covid and post-acute symptoms. • 0:07
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Discussion on the initial lack of awareness about having Covid-19 and experiencing severe symptoms. • 3:15
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Realization of ongoing symptoms post-acute phase leading to diagnosis of long Covid. • 4:50
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Explanation of post-acute Covid-19 syndrome and its impact on patients. • 5:33
Challenges faced by long Covid survivors, including fatigue, brain fog, and memory issues.
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Long Covid survivors experience overwhelming fatigue and brain fog, impacting daily life and work. • 5:56
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Symptoms of long Covid can vary widely, with up to 200 different reported symptoms. • 7:57
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Survivors struggle with memory issues, such as difficulty remembering names and faces. • 9:25
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The impact of brain fog may differ between manual laborers and executives. • 10:07
Challenges and coping mechanisms of long Covid patients, including unusual symptoms and alternative treatments.
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Patients adapt to remote work and develop personal techniques for managing symptoms. • 10:35
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Recording everything in a notebook to track daily experiences and symptoms. • 10:42
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Brain fog affecting relationships more than physical abilities. • 11:20
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Unusual symptom of uncontrollable itching without visible rash, leading to distress and seeking alternative treatments. • 11:44
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Exploration of alternative medicines like magnesium and vitamin D for managing ongoing brain fog. • 14:22
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Viewing severe Covid as a viral mediated autoimmune disease to understand its complexities. • 15:01
Insights on the diverse manifestations of long Covid and the importance of understanding and addressing ongoing symptoms.
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Autoimmune diseases can manifest in various ways in individuals with long Covid. • 15:16
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Long Covid presents with a wide range of symptoms not necessarily related to the severity of the initial disease. • 15:49
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Distinguishing between complications of Covid and post-acute conditions is crucial for proper management and treatment. • 16:10
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Fatigue is a common and significant symptom in long Covid patients, indicating a potential biochemical connection. • 16:49
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Insomnia and rheumatoid arthritis are some additional symptoms experienced by individuals with long Covid. • 18:01
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Weight gain, metabolic disorders, and heart problems like cardiomyopathy can also develop in long Covid patients. • 19:26
Challenges faced by patients with long Covid symptoms, including dismissal by doctors and stigma around psychological issues.
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Patients often face dismissal by doctors and stigma around psychological issues when reporting long Covid symptoms. • 20:13
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Patients may hesitate to share certain symptoms like tingling sensations due to fear of not being taken seriously. • 20:19
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Doctors sometimes struggle to provide answers for unexplained symptoms, leading to frustration and loss of faith in medical care. • 21:41
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Women, in particular, may face a higher likelihood of not being taken seriously for their symptoms in the American medical system. • 24:09
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The lack of validation and support from healthcare providers can drive patients, especially women, to avoid seeking medical help. • 24:32
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This trend may lead patients to seek alternative treatments, potentially risking their health and well-being. • 24:44
Challenges in understanding and treating long Covid, emphasizing the need for proper pathophysiology clarification.
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Patients face complexities in differentiating symptoms of long Covid from other health issues. • 24:50
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Difficulty in determining if comorbid conditions are exacerbated by long Covid or unrelated. • 25:14
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Comparison of long Covid challenges to fibromyalgia and ME/CFS, highlighting the lack of clear treatment options. • 26:30
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Hope for understanding long Covid pathophysiology to shed light on similar diseases like fibromyalgia and ME/CFS. • 27:12
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Call for medical community to take long Covid symptoms seriously and provide symptomatic relief for sufferers. • 28:44
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Emphasis on the importance of clarifying pathophysiology of COVID-19 to address long Covid effectively. • 29:04
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Highlighting the necessity to understand autoimmune paradigm for effective long Covid treatment. • 29:42
Insights on the challenges of long Covid and the need for research and awareness.
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Urgent need for research and awareness on long Covid and related diseases. • 30:20
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Advocacy for patients to demand serious attention towards long Covid. • 30:45
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Stigmatization and lack of open discussion around long Covid. • 31:08
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Upcoming Long Covid solutions congress on March 12th for research collaboration. • 31:38
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Importance of raising awareness for those silently suffering from long Covid. • 32:31